FASD Fact #19: People with FASDs and their families need FASD-informed supports

Text:

  • People with FASDs and their families need FASD-informed professionals to help them.
  • Most professionals (doctors, therapists, teachers, psychologists, social workers, and other “experts” are not FASD informed.

“Participants emphasized the pervasive lack of knowledge of FASD throughout multiple systems. This lack of knowledge contributes to multi-system barriers including delayed diagnosis, unavailability of services, and difficulty qualifying for, implementing, and maintaining services.”

from  Petrenko, C. L., Tahir, N., Mahoney, E. C., & Chin, N. P. (2014). Prevention of secondary conditions in fetal alcohol spectrum disorders: identification of systems-level barriers. Maternal and child health journal18(6), 1496-505.